Call for abstracts: 53rd ICBDSR Annual Scientific Meeting in Bogotá
Researchers and birth defect program directors are invited to submit original investigations on congenital malformation monitoring, etiology, and global registry integration.
Uniting international epidemiological registries, researchers, health professionals, and public health authorities to monitor congenital anomalies, discover etiologies, and advance birth defect prevention across the globe.
Since its establishment in 1974, the ICBDSR has linked national and regional registries worldwide to monitor anomalies and prevent birth defects.
Explore interactive prevalence queries and epidemiological tables across 42 international member registries. Filter by anomaly, analyze multi-year trendlines, and export standardized research datasets directly.
Evaluate prevalence across programs for neural tube defects, congenital heart, orofacial clefts, gastrointestinal, and chromosomal anomalies, with ascertainment criteria (live births, stillbirths, and TOPFA).
Browse conditions →Review individual member registry profiles worldwide, examining local denominator births, case definition standards, and operational commentary directly from program directors.
Explore member programs →Guiding international surveillance methodology, fostering research collaborations, and stewarding the mission of the Clearinghouse across member registries worldwide.
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Five decades of international scientific gathering and surveillance collaboration.
Honoring exceptional career leadership, distinguished service to the International Clearinghouse, and outstanding scientific contributions by early-career researchers in birth defects epidemiology.
The ICBDSR Distinguished Service Award honors individuals who have provided distinguished leadership, editorial dedication, and sustained service to the International Clearinghouse for over seven years, advancing global surveillance methodologies and birth defect prevention.
2025
National Registry of Congenital Anomalies (RENAC), ANLIS, National Ministry of Health • Argentina
2024
Czech National Birth Defects Register, Institute of Biology & Medical Genetics, Charles University • Czech Republic
2023
ICBDSR Centre Secretariat • Rome, Italy
2022
Iowa Registry for Congenital & Inherited Disorders, College of Public Health, University of Iowa • United States
2021
Texas Birth Defects Epidemiology and Surveillance Branch, Department of State Health Services • United States
2019
Division of Medical Genetics, Department of Pediatrics, University of Utah School of Medicine • United States
2018
Spanish Rare Diseases Research Institute (IIER) & ECEMC, Instituto de Salud Carlos III • Spain
2017
Former Director, ICBDSR Centre; Pediatrician and Epidemiologist • Rome, Italy
2016
Division of Medical Genetics, University of Utah School of Medicine • United States
2015
Western Australia Register of Developmental Anomalies, Telethon Kids Institute • Australia
2014
Department of Neonatology, Rabin Medical Center, Beilinson Campus • Israel
2013
Founder and Director, ECLAMC (Latin American Collaborative Study of Congenital Malformations) • South America
2012
Alberta Congenital Anomalies Surveillance System (ACASS), University of Calgary • Canada
Established to recognize exceptional early-career investigators in birth defects epidemiology and surveillance (within seven years of formal training). The awardee presents their research at the Annual Scientific Meeting of the ICBDSR.
2025
Hararghe Health Research, Haramaya University • Ethiopia
2025
School of Medicine, Ulster University • Northern Ireland, United Kingdom
2017
Department of Epidemiology & Center for Spina Bifida Prevention, Rollins School of Public Health, Emory University • United States
2016
Institute of Biology and Medical Genetics, 1st Faculty of Medicine, Charles University, Prague • Czech Republic
2015
University of Texas Health Science Center at Houston, School of Public Health • United States
2014
National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia • United States
2013
Alberta Congenital Anomalies Surveillance System (ACASS) • Alberta, Canada
2011
Singleton Hospital • Swansea, Wales, United Kingdom
2010
EUROCAT Northern Netherlands, University of Groningen • The Netherlands
2009
Telethon Institute for Child Health Research, University of Western Australia • Australia
2008
National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia • United States
2007
ECLAMC • CONICET, University of Buenos Aires • Argentina
2007
Telethon Institute for Child Health Research • Western Australia, Australia
Updates on birth defect surveillance methodologies, international epidemiological studies, and annual conference preparations.
Researchers and birth defect program directors are invited to submit original investigations on congenital malformation monitoring, etiology, and global registry integration.
The Clearinghouse Centre has released its Annual Report, featuring interactive prevalence queries across 40 congenital anomaly categories.
Published in Birth Defects Research, this landmark ICBDSR multicentric study evaluates four decades of surveillance data (1980–2017), analyzing long-term time trends, regional variation, and associations with maternal age.
ICBDSR is proud to be a co-founder and global sponsor of World Birth Defects Day (#WorldBDDay), raising awareness, eliminating stigma, and advocating for universal primary prevention.
Explore WBDD resources →